You are more likely to know someone walking through the fog of brain injury than you are to know someone with cancer.

Really, you are.  Think about this:
  • 1.8 million people each year are diagnosed in the Emergency Room each and every year with brain injury from some kind of blow to the head
  • 700,000 people have strokes that have some thinking deficits as part of the package, each and every year
Add to that the fact that no one really keep stats on those brain injuries related to chemo-therapy, anesthesia, medications, and neurological diseases that pop up each and every year. Now consider unknown number of combat-related brain injuries and all those brain injuries that are still significant but not diagnosed in the ER (like mine).

Trust me. You know someone who has had a brain injury.
In today's featured broadcast on the Being Brain Healthy Virtual Book Tour I speak with an amazing woman, Tami Neuman from the Care Radio Network and host of Conversations in Care. Tami has  years of experience caring for dementia patients and she really gets it that "reality" (yes those are air quotes) is not the same for everyone and that support for those with brain challenges is best given with a healthy dose of compassion and joy.

In addition to everyday brain health and turning up the noise on life, Tami and I spoke about promoting dignity, self-respect, and understanding for those we are supporting by treating each as intelligent, vibrant adults. We talked about how I realized one day that we all (yes all of us) speak to people who are struggling to think or understand as if they were children – we speak slowly and clearly using simple, tiny words – and that is just not OK.

Listen in our conversation HERE.  Warning: Listening to Conversations in Care may be habit forming!

What have you noticed about how people change when they care for others?

Here's to remembering to put dignity, self-respect, and quality of life at the core of caring for others.
 
 
Finding hope in aging is a challenge that we must take on in order to thrive.
Finding humor and all that is good in that crazy process is exactly what I spoke to 2 Boomer Broads about on the first stop on the Virtual Book Tour to promote Being Brain Healthy, the book, and spreading the hopeful message about brain healthy choices and lifestyles.

We talked a lot about the sense of smell and how to use that sense to activate your brain and your life.  Did you know that you can use the sense of smell to spur creativity? Or that pairing a scent with an item will increase the chances of remembering it? Listen in to find out more!
Check out the tour line-up on the Book Tour page on RollingMulliganPublishing.com

Next stop Conversations in Care with Tami Neuman on BlogTalk Radio!

This entry was originally published on www.craniumcrunches.com.
 
 
Brain injuries are tricky little devils. Most of the time they hide so well that no one is able to see them no less note that anything is wrong. Sometimes they show up after the most unlikely events  like surgery or treatment for a disease, or as part of the progression of a disease not necessarily localized in the brain.  They are not just the result of a traumatic physical incident or an accident or a fall or a stroke. Brain injuries and all the stuff that goes along with them sometimes simply pop up without warning.

Medical professionals give them names that sound so harmless, like post-concussive syndrome or chemo brain or brain fog, that they don't even feel worthy of a deeper look. But they are.

Here is the big question: How do you help someone with something you can't see? Even the well intended will miss the signs if they are not looking for them and, to be fair, how would they know to look?

The biggest indicator is change in behavior, attitude, level of involvement in life, personality, and routine. If you see a change, take a deeper look.

If you believe you are living with someone who has had some kind of brain change, here are some tips:

  • Listen, watch closely, and adapt to changes as they happen.
  • Drop assumptions and preconceived notions about how that person “should be”.
  • Slow down and think through your questions, especially when you get unexpected answers.  Perspective, among so many other things, changes so it may take a while to find the right question.
  • Find those things that are difficult and create ways to practice those skills in a safe place.   Games – board games, word games, car games, online games, apps – are ideal.
  • Think about how frustrating the changes are for you and now imagine having those same frustrations with no way to control your emotions or think your way out of them….
  • Find the experts as you need and support groups when you need.
  • Know that, if this is a brain injury, that person will change, not just during recovery but also might be different in the end. Make the most of that new person and celebrate what you can.

Let's take a look at some real examples.

SYMPTOM: Sensory problems, such as blurred vision, ringing in the ears or a bad taste in the mouth
EXAMPLE:
• “What is that smell?” when there is nothing unusual.
• Favorite foods don’t taste good or are no quite right. You might hear “Did you try a different recipe?”.
• Children might have “crawly” feeling (skin sensations) or hear mosquitoes or bees.
• Limbs “fall asleep” more than usual and for not identifiable reason.
• Repeatedly cleaning glasses, moving closer to the TV, changing the position (closer and farther away) of reading material.
• Does not turn on the lights or sits in silence.

SYMPTOM: Change in ability to pay attention
EXAMPLE: 
• You have to repeat instructions more than usual and maybe things still don’t get done.
• Everything gets started (projects, tasks, chores, thoughts, games, puzzles, books, preparing dinner, laundry, etc.) but nothing is finished when that is normally not the case or at least to a lesser extent.
• Can’t sit still for personal normal periods of time.

SYMPTOM: Mood changes or mood swings
EXAMPLES:
• Unusual emotional outbursts or periods of long silence.
• A lack of patience (resulting in agitation) in situations that would not normally be a source of anxiety as seen in little things like waiting for toast to finish or clothes to finish drying.
• Not interested in favorite things or routine things. In children, this could be things like not interested in favorite toys or activities.
• Does not want to be around people.

The key to all of this is look for change! Keep a list and report all of this to the person or group managing care. They may be breadcrumbs that will help form better treatment but at the very least all of these things are indicators that help build the best plan for recovery.

What other practical, everyday signs and symptoms have you seen?